Well I suppose it is time to make a start. For the last few years , three may be four I have been caring for my wife who was suffering from a rare neurological illness called progressive supra nuclear palsy . It probably manifested itself a few years previously but it was along time before we got a diagnosis . I am not going into the ins and outs of the illness but just to say it was devastating as it robbed my wife of the ability to do anything . It was totally time consuming being her full time carer and now sadly she has died and at the age of 74 , I have to face life without my partner of over fifty years . I have to make a new start and deal with things that I have never thought about . So I have decided to chronicle my progress as best I can .
But where to start , there are so many emotions which cascade over one , like repeating waterfalls . The grieving process is overwhelming . Apart from missing my wife Veronica dreadfully ( and I would give anything to have her back although I know that is selfish of me as her quality of life was miserable ) I feel a great emptiness . I feel as though I am living in a vacuum waiting for something to happen yet knowing that the only things that will happen are things which I instigate . Yet I have no will or desire to instigate anything . Even as I write my eyes fill with tears , some for my wife and some for me and the huge loneliness that I now face .
Each morning I wake early half expecting , no in fact expecting to hear the movements of the night carers getting ready to write up their note prior to leaving . But as I come out of my fitful night's sleep there is nothing , silence . I get up just the same even though there is no urgency to start the day , really there is no urgency left in any part of my life . For the past four years I have been governed by the caring routine , meals washing , dressing , medication and so on now there is nothing for me to do and it is frightening .Breakfast and getting the day under way took two hours or so now I am done in a few minutes and the long day stretches ahead like a blank canvass . What shall I paint ? I don't know .
"Early days ' people say to me , "it's all very raw " . I am sure they are right but does it help , not really .I know that I have got to make an effort and step outside and rejoin the world but at the moment I can't I just want to curl up and die , The silence is deafening - I will do it , I have to but not today .
Hi,
ReplyDeleteAll best wishes to you from someone who has CBD. I will try to update you from time to time on my 'Progress'
Patrick.
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ReplyDeleteAs always you write so evocatively.
ReplyDeleteWe look forward to coming here.
Waiving to you and wishing you the best
Liz and Kevin